You are in the right place.

You are in the right place.

Welcome to RareQoL We are experts: through lived experience and professional expertise.

Driving change through Collaboration-Outreach-Co creation- Outcome focused activities.

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Health Equity

Health Equity

We understand the impact of health inequalities. Advancing Inclusive Research and Practice.

Our work includes training and consultancy.

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We are outcome focused.

We are outcome focused.

We use effective community engagement strategies. We work with rare disease and diverse communities.

We connect with a wide network of people and organsiations.

Make an enquiry today
EDIRA Academy Network

EDIRA Academy Network

Equality Diversity and Inclusive Research Association Empowering a global community of practice.

Our EDIRA Academy unites advocates, researchers, healthcare professionals, and patient groups to advance equality, diversity, and inclusive research in rare diseases.

Welcome to RareQoL.

At RareQoL, we are dedicated to improving the quality of life for individuals, families, and communities affected by rare diseases and long-term health challenges.

As a leading social enterprise in the UK, we work tirelessly to create a more inclusive, supportive, and equitable future for the communities we serve.

Our mission is rooted in empowering diverse communities, bridging gaps in care, and advancing the principles of Equality, Diversity, and Inclusion (EDI).

Community Networks

At RareQoL, we are dedicated to transforming the lives of people affected by rare diseases and those from ethnic minority communities through inclusive and, collaborative research, and a strong commitment to health equity. Our mission is to, amplify the patient voice, and drive positive change and improve quality of life.

COLLABORATION

OUTREACH

CO-CREATION

Outcomes

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COCO: COLLABORATION -OUTREACH-CREATION-OUTCOMES
Collaboration

The Power of Collaboration

People from diverse backgrounds and experiences bring unique perspectives to the table. Through collaboration, we've seen improved access to healthcare and education. Increased re presentation of diverse voices in decision making processes. Sustainable solutions for long-term improvements in health equity and quality of life.
Outreach

Why Outreach Matters.

Outreach is the bridge that connects us to individuals and communities who may be unaware of the resources and support available to them. By actively reaching out, we can: 1) Identify unmet needs and address them proactively. 2) Build TRUST and foster long-lasting relationships. 3)Empower individuals to take control of their health and well-being.
Co-creation

Co-Creating a Healthier Future.

We are passionate about harnessing the Power of Co-Creation. By working side-by-side with individuals and communities, we can: 1) Identify and address the root causes of inequities. 2) Develop culturally relevant and trauma-informed approaches. 3) Empower individuals to take control of their own health and well-being. Many individuals, particularly those from marginalized communities, have experienced trauma. By adopting a trauma-informed approach, we can create safe and supportive environments for co-creation to flourish.
Outcome--focused

Impactful Approaches for a Better Future

We are committed to making a difference. Our outcome-focused approach ensures that our initiatives have a real and lasting impact on the lives of individuals and communities An outcome-focused approach is a strategic framework that prioritizes measurable results. By setting clear goals and tracking progress, we can: 1)maximize our impact. 2)Ensure that our resources are used effectively. 3) Learn and adapt. 4)Continuously improve our strategies based on data and feedback.
Our Projects and Activities

Check out the range of activities and projects we are involved in!

EDI Training for Boards

We provide tailored training solutions can meet your board’s needs. Together, let’s make equity, diversity, and inclusion central to your organization’s success.

Coaching Circles

We are formalising our learning networks into Coaching Circles. Whether for personal development or organizational progress, coaching circles exemplify the power of collaboration and shared learning.

Inclusive Research and Practice

We have been involved inclusive mixed methods research. By involving diverse voices, particularly those with lived experience, we ensure that health and social care services meet the real needs of all communities.

Diverse Communities of Practice

We work with patient advocacy groups and practitioners from health, social care, academia and pharmaceutical industry. We believe that diverse communities of practice are the cornerstone of driving meaningful change in health and social care.

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