Our Key Moments
We started as a grass roots organisation. We are based in north Wales and work across the UK.
Our Team
Dr Sondra Butterworth
RareQoL CEO and Founder
Dr Sondra Butterworth is a former
Rose Francis
RareQoL Project Manager
Rose provides administration and project management support for RareQoL and our EDIRA project.
Rose supports our Rare Community Network members, organises meetings and projects manages our online and in person events.
Associate Professor Dr Andrew Mitchell
University of Chester
Associate Professor of Mental Health Research at the University of Chester, UK. He is a registered Mental Health Professional and a Chartered Psychologist. He co-chairs the Equity, Diversity, and Inclusion Research Association and speaks for inclusiveness in research and research ethics.
Humie Webbe
EDI Consultant
Providing strategic equality, diversity inclusion policy advice and guidance relating to health, social care and wellbeing. Identifying funding and co-production opportunities to improve Rareqol’s inclusive research business offer.
Avril Warlow
Sales manager
Avril is a teacher and advisor for educational support.
She provides consultancy for our EDIRA Academy learning platform.
Glenn Webbe
Ambassador
Glen was the first Welsh Afro-Caribean man to represent Welsh Rugby Union. He is now Calibrant an expert speaker and self advocate for black men and mental health. Glen is our EDIRA ambassador and spoke at our first EDIRA conference.