EDIRA Conference 2023

Equality Diversity and Inclusive Research Association

EDIRA Conference 2023

Our Equality Diversity and Inclusive Research Association Conference was held in person in Cardiff on 12th May and on line on the 19th May 2023.

The conference was chaired by Dr Sondra Butterworth and Associate Professor Dr Andrew Mitchell from the University of Chester.

The event included attendees from difference Communities of Practice including Rare Disease, Public Health, Diverse Communities, Health and Social Care and Academia.

We were fortunate to receive enough sponsorship and support for us to have a successful conference.

As a result of the conference activities, we were able to expand on our EDIRA project work and research.

Our research has identified nine barriers to inclusion in research and engagement for diverse rare disease communities. One key underpinning theme running through all the barriers was TRUST.

We are planning our second EDIRA event which will be our EDIRA Building Trust Symposium, which will be taking place on the 21st June 2024 in Birmingham.

Introducing EDIRA

EDRIA project chaired by Dr Sondra Butterworth and Associate Professor Dr Andrew Mitchell from the University of Chester.

We are proud of the success of our EDIRA conference. We will be posting information about the exciting plans we have for the future of EDRIA!

EDIRA: Nine Barriers to Inclusion
EDIRA – Nine Barriers to INCLUSION

Following on from the success of our EDIRA conference, we will be launching an eLearning course which will be FREE to our MEMBERS!

Dr Sondra Butterworth is the founder of the EDIRA project. Sondra’s research was based on exploring the relationship between Quality of Life and Social support for adults living with rare conditions. At the end of her PhD studies, she concluded that, the narrative stories of the participant’s lived experience, clearly and most definitely indicated that they were not only underserved, but often excluded.

EDIRA Podcast

EDIRA conference report: Main Sponsors Couch Health

The Road to EDIR: A Road Less Travelled.

We are very thankful for to our sponsors Couch Health. Without support from our sponsors we would not have been able to put on our successful EDIRA conference.

To read the conference report, click on the picture or follow the link HERE

EDIRA Conference Supporters

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