EDIRA Conference 2023
Our Equality Diversity and Inclusive Research Association Conference was held in person in Cardiff on 12th May and on line on the 19th May 2023. The conference was chaired by Dr Sondra Butterworth and Associate Professor Dr Andrew Mitchell from the University of Chester.
The event included attendees from difference Communities of Practice including Rare Disease, Public Health, Diverse Communities, Health and Social Care and Academia.
We were fortunate to receive enough sponsorship from Couch Health and NIHR BioResearh and Cwmpus and support for us to have a successful conference.
EDIRA-23 was support in partnership with the University of Chester UK.
Dr Sondra Butterworth is the founder of the EDIRA project. Sondra’s research was based on exploring the relationship between Quality of Life and Social support for adults living with rare conditions. At the end of her PhD studies, she concluded that, the narrative stories of the participant’s lived experience, clearly and most definitely indicated that they were not only underserved, but often excluded.
As a result of the conference activities, we were able to expand on our EDIRA project work and research. Our research has identified nine barriers to inclusion in research and engagement for diverse rare disease communities. One key underpinning theme running through all the barriers was TRUST.
EDIRA conference report: Main Sponsors Couch Health
We are very thankful for to our sponsors Couch Health. Without support from our sponsors we would not have been able to put on our successful EDIRA conference.
To read the conference report, click on the picture or follow the link HERE