October 2024
Unveiling EDIRA Partners – A Bold Step Toward Inclusive Research and Transformative Healthcare
RareQoL is thrilled to introduce EDIRA Partners, a powerful alliance committed to revolutionizing diversity and inclusion in research and healthcare. This groundbreaking collaboration targets five vital areas—diversity in clinical trials, health equity in rare diseases, inclusive data collection, collaborative policy advocacy, and capacity building—bringing together leading experts from the pharmaceutical, healthcare, and academic sectors.
Together, we are challenging underrepresentation, driving health equity, and shaping inclusive research that truly reflects every voice. Join us in empowering change and building a future where no one is left unheard in research and healthcare.
October 2024
Black History Month: Reclaiming Our Narratives – “We Are Walking, Talking Data Sets”
This Black History Month, RareQoL celebrates the theme of Reclaiming Our Narratives, emphasizing the power of personal stories in shaping healthcare and research. In our RareQoL Community Network, we champion the voices of minority ethnic groups, particularly those living with rare diseases, who are often underrepresented in research. As “walking, talking data sets,” we recognize that every experience contributes to a richer, more inclusive understanding of health.
Our community is growing, and together, we are influencing change—ensuring diverse voices are heard, valued, and reflected in research and care practices. Join us in amplifying these crucial narratives.
September 2024
RareQoL Consultancy: Leading the Way in Anti-Racist Social Care
We are thrilled to announce a key consultancy outcome: the publication of the paper, “Delivering Social Care in Anti-Racist Wales: Recruitment,” which highlights actionable strategies for equitable recruitment in social care. This achievement reinforces RareQoL’s growing reputation as a trusted consultancy in Equality, Diversity, and Inclusion (EDI).