Our Key Moments.
How we created an impact with our equality Diversity and Inclusive Research Association.
Our EDIRA Partners include members from across the UK. We are transforming healthcare, research, and education through a robust and collaborative partnership model that prioritizes Equality, Diversity, and Inclusion (EDI). Our aim is simple yet powerful: to create a future where health disparities are minimized, trust is built across communities, and every voice is heard in the co-creation of healthcare solutions. By harnessing the strength of our five core themes.
EDIRA-25 Partners
Together with our partners, we are reshaping health systems by addressing health inequalities, ensuring inclusive research practices, and fostering diverse leadership in medicine and healthcare. Our work builds a foundation of trust and collaboration, elevating the voices of underrepresented communities and creating innovative solutions that directly impact lives.
Our EDIRA Partnership represent the the vision and drive for inclusive research, practice and health education that drives service improvement and improves quality of life.
– Dr Sondra Butterworth CEO RareQoL and EDIRA Founder
EDI Specialist RareQoL
Associate Professor University of Chester
Project Manager RareQoL
CEO Intent Health
Founder of Communect
CEO M4RD
CEO PIP UK
Associate Professor University of South Wales
University of South Wales
Medical Doctor
Medical Consultant Cardiff and Valet
Rare Disease Implementation Manager Wales
We have considered our collective strengths knowledge-base and networks. We have created a matrix to identify where we have the opportunity to collaborate and co-create, based on five work packages.
Equality, Diversity, and Inclusion (EDI)
Tackling barriers to inclusion, building trust, and fostering public
participation inclusion and engagement (PPIE).
Inclusive Research and Practice
Promoting health literacy, patient-centricity, and diversity in clinical trials through innovative methods.
Medical and Healthcare Education
Raising awareness about cultural competence and rare disease awareness to better serve all populations.
Rare Disease Advocacy
Elevating the voices of rare disease patients through shared lived experiences and consultations. Promoting narrative-based, and trauma-informed approaches.
Service Improvement and Innovation
The Rare Diseases Framework and Anti-Racist Wales Action Plan: practical solutions, positive change.
Picture of our Building Trust Symposium Discussion Groups: June 2024
