Humie is our RareQoL EDI Specialist. She has provided workshops for our Rare Community Network. Humie was a speaker at our EDIRA 2023 conference, she was also part of a focus group which RareQoL has been involved in with the Cardiff University Learn Project funded by the Michael J Fox Foundation.
Humie will also an author on our forthcoming EDIRA book.
Rose is our RareQoL Administrator and Project Manager. Her role is vital to the success of RareQoL. Rose has excellent project management skills will is we have come to heavily rely on as RareQoL develops.
Sam Fillingham is the CEO of the Rare Disease Charity PIP UK.
We are delighted that RareQoL and PIP UK have signed a Memorandum of Understanding and have agreed to work in partnership on a number of projects.
Sam was a speaker at our EDIRA conference and Sondra and Sam were interviewed by Kimberly on a podcast to promote our partnership.