Welcome to our inclusive and empowering rare community network our RCNet.
We are dedicated to championing the voices of our underserved and under-represented rare disease community. We will be delighted to have you join our network, where individuals, families, caregivers, and advocates come together to connect, support, and advocate for those affected by rare diseases.
Within this compassionate community, you’ll find a safe and understanding space to share experiences, exchange knowledge, and find a network fosters collaboration and empowerment, allowing us to collectively raise awareness, drive research, and advocate for improved quality of life for our rare diseases community.
Join us in celebrating the strength and resilience of rare disease advocates and champions, and together, let’s create a powerful voice that drives positive change. Embrace the connections, support, and opportunities within our network, and know that you are an invaluable part of this extraordinary community
We have a dedicated online platform for RCNet Members.
a. Individual advocates from the rare disease communities
b. Small charities or community groups with less than £200k turnover
We have a dedicated online platform.
We meet on ZOOM.
We meet every 4 months.
Special interest groups will also meet throughout the year.
1. Membership It’s FREE.
3. Free places at our conference.
4. on-line support.
6. Opportunities for collaboration and co-production.
7. Coaching and mentoring.
9. Opportunities for income generation.
· eLearning affiliate
· Facilitation and presenting.
· Joint funding applications