We offer research consultancy services for charities, community groups, and public sector organisations.

Our research activities include a range of methods.

This page includes some of our research projects.

Our Research Philosophy

Our Approach

Our research approach is influenced by the principles of community psychology. This includes respect for equality and diversity, empowerment and participation. We promote co-creation and a mix of both quantitative and qualitative research methods. Our research projects aim to deepen the understanding of the lived experience of under-represented communities.

Community-Based Research

community could be defined as a group of people living in the same place or having a particular characteristic in common. These are communities that may be defined by their ethnicity, culture, disability, age, location or rare disease. As a grassroots social enterprise, we recognise the importance of understanding the expressed needs of the people we support.

The World Health Organisation presents a holistic definition of health, stating that Social Determinants of Health include: social support networks, support from families, friends and communities.

We are challenging the medical model of health and support and advocating a narrative based bio-psycho-social approach to support diverse rare disease communities. RareQoL is a community based social enterprise.  One of our principal goals is to work with  groups to promote and support community-based research and evaluation.

Mixed Methods Research

Research can be defined as a careful study of a subject or group to discover new information and to gain a deeper understanding of a research problem.
There is often an assumption that research is only undertaken by health or social care professionals in clinical or academic settings. Community-based groups do not often lead or drive research projects…


The mixed-method can include a combination of traditional research methods such as drug trials but can include surveys, focus groups, questionnaires, and interviews, stories and observations.

Conference Presentation

Our Research Projects

Dr Sondra Butterworth PhD Study

Genetic Alliance UK EDI Review

Swansea University Qualitative Study

Medics 4 Rare Diseases Red Flags Survey

Metabolic Support UK Patient Survey

Community Well-being Survey

Research Conference Poster

Research Education Videos

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