Let’s COCO and Celebrate ‘The Doers‘.
ABOUT THE EVENT
Let’s COCO: Celebrating the Doers is an uplifting event from the Equality, Diversity and Inclusive Research Association (EDIRA).
Connecting
This hybrid event brings together people from research, health, education, and community sectors to recognise and celebrate those making a real difference in equality, diversity, and inclusion—especially for rare disease and marginalised communities.
EDIRA Partners
Our EDIRA PARTNERS have worked with remarkable and innovative individuals and teams who have addressed issues of health equity and inclusion.
They have made a significant impact on the quality of life for diverse and underserved communities accessing health services, and for rare disease patients and families. We want to celebrate and learn from their innovative work.
THE BOOK OF DOERS
The “Book of Doers” is an inspiring collection of real-world stories from patient advocates, researchers, and innovators driving equality, diversity, and inclusion in rare disease communities. Our event will be showcasing lived experiences and practical solutions; it will highlight how collaboration and co-creation foster health equity and positive change across the sector.
Our ‘Book of Doers’ includes case studies from our EDIRA Partners, collaborators, and sponsors.
The presentations will showcase real-world examples of:
- Equality, Diversity, and Inclusion (EDI): Tackling barriers, building trust, and promoting public participation and engagement for all communities.
- Rare Disease Advocacy: Elevating the voices and lived experiences of rare disease patients, and advancing narrative-based, trauma-informed approaches.
- Health Education: Raising awareness of cultural competence and rare disease issues, and supporting inclusive, accessible education for healthcare professionals and the public.
- Inclusive Research: Promoting health literacy, patient-centricity, and diversity in research and clinical trials through innovative, participatory methods.
- Service Innovation and Improvement: Advancing practical solutions, digital health, and co-designed services to improve quality of life and care for all.
EXPERT PANEL
Experts with lived experience
Our expert panel in our EDIRA-24 event Building Trust Symposium, provided valuable perspectives on health equity, health education, community engagement and inclusion.
You’ll also join lively panel discussions, network with others passionate about positive change, and celebrate unsung heroes making impactful contributions across these five areas.
Everyone is welcome—whether you’re a professional, advocate, or community member interested in advancing inclusion and health equit
If you are working in clinical researche, pharmaceutical industry, healthcare or patient advocacy. and want to understance how the ‘Doers’ achieve their outcomes, this event is for you.