Welcome to RareQoL We are experts: through lived experience and professional expertise.

Driving change through Collaboration-Outreach-Co creation- Outcome focused activities.

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Health Equity

We understand the impact of health inequalities. Advancing Inclusive Research and Practice.

Our work includes training and consultancy.

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We are outcome focused.

We use effective community engagement strategies. We work with rare disease and diverse communities.

We connect with a wide network of people and organsiations.

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EDIRA VOICES

Voices of Inclusion for Community Engagement in Studies Improving health equity through inclusive research.

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What do we do? Yello banner with black writing

Who do we work with?

We work with a diverse and wide range of experts through experience and experts though practice.

Health and Social Care Teams

We work with health teams to support service improvement. We provide in-person and online training and resources, that supports psychologically safe services and more equitable experiences for people and families and communities.

Universities and research teams

University and Research Teams

We support inclusive research design, ethical co-production, and community engagement that builds trust and improves participation from underserved groups. From student placements to applied evaluation, we help you deliver publishable, real-world impact.

Community and Patient Organisations

Rare Disease and Ethnic Minority Communities

People from underserved communities bring vital lived expertise. We connect, listen, and build trust with rare disease and ethnic minority communities, disabled people, and carers. Together we strengthen representation and access to support.

Pharma Industry

We work with pharma industry to help turn patient centricity into practical, trust-led systems that strengthen inclusion across clinical research. Sponsorship and Expert-in-Residence options are available for teams ready to embed change.

Are you ready to stop tick-box inclusion and build trust that lasts?

On this website you can explore our consultancy and training, join RCNet (Rare Community Network), and access EDIRA Academy for practical eLearning, tools, and paid membership support. If you want inclusive research and patient engagement that communities recognise — and that delivers measurable impact — let’s talk.<br />

Enquiries

Welcome

You are in the right place.

Welcome to RareQoL We are experts: through lived experience and professional expertise.

Health Equity

We understand the impact of health inequalities. Advancing Inclusive Research and Practice.

We are outcome focused.

We use effective community engagement strategies. We work with rare disease and diverse communities.

EDIRA VOICES

Voices of Inclusion for Community Engagement in Studies Improving health equity through inclusive research.

We work with a diverse and wide range of experts through experience and experts though practice.

Health and Social Care Teams

University and Research Teams

Rare Disease and Ethnic Minority Communities

Pharma Industry

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