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Welcome to RareQoL We are experts: through lived experience and professional expertise.

Driving change through Collaboration-Outreach-Co creation- Outcome focused activities.

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Health Equity

We understand the impact of health inequalities. Advancing Inclusive Research and Practice.

Our work includes training and consultancy.

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We are outcome focused.

We use effective community engagement strategies. We work with rare disease and diverse communities.

We connect with a wide network of people and organsiations.

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EDIRA VOICES

Voices of Inclusion for Community Engagement in Studies Improving health equity through inclusive research.

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Who do we work with?

We work with a diverse and wide range of experts through experience and expert though practice.

Community and Patient Organisations

Diverse Communities

People from diverse backgrounds and experiences bring unique perspectives to the table. Through collaboration, we've seen improved access to healthcare and education. Increased re presentation of diverse voices in decision making processes. Sustainable solutions for long-term improvements in health equity and quality of life.

Universities and research teams

University and Research Teams

Outreach is the bridge that connects us to individuals and communities who may be unaware of the resources and support available to them. By actively reaching out, we can: 1) Identify unmet needs and address them proactively. 2) Build TRUST and foster long-lasting relationships. 3)Empower individuals to take control of their health and well-being.

Health and Social Care Teams

Health and Social Care Teams

We provide in-person and online training (including anti-racism and inclusive practice) that supports psychologically safe services and more equitable experiences for people and families.

Pharmaceutical Industry

Pharmacuitical Industry

We are committed to making a difference. Our outcome-focused approach ensures that our initiatives have a real and lasting impact on the lives of individuals and communities An outcome-focused approach is a strategic framework that prioritizes measurable results.

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