EDIRA Academy Network
EDIRA Academy is RareQoL’s learning hub for advocates and teams from health,care, pharma patient engagement and academics with a need to improve their inclusive research knowledge and practice. Designed to help teams deliver patient-centred approaches that are credible with communities and practical for delivery.
Join EDIRA ACADEMY Network
As an EDIRA Academy Network member, you will be able to access expert information and guidance from Dr Sondra Butterworth. Sondra a former general nurse, now a Community Psychologist, inclusive mixed methods researcher and educator.
Anti -racist Wales Action Plan
This practical eLearning course designed to help individuals and organisations understand what the plan is, why it matters, and what meaningful anti-racist action looks like in everyday practice. It translates policy into clear, accessible learning — supporting culturally responsive leadership, safer spaces, and more equitable decisions across health, social care, research, and the third sector.
Advancing Equity and Inclusive Research in Rare Diseases
A practical course for anyone involved in rare disease research, engagement, or service design who wants to reduce inequalities and build trust with communities. You’ll learn how to apply inclusive, culturally responsive approaches across the research pathway — from setting priorities and recruitment, to communication, involvement, and feedback — so participation is ethical, accessible, and meaningful.
Three Layers of Authentic Community Engagment
This is a practical eLearning course for anyone who wants to build trust-led engagement that communities can recognise and rely on. It guides you through three connected layers — starting with your own values, assumptions, and readiness, then strengthening relationships and communication, and finally embedding inclusive engagement into systems and decisions — so involvement is ethical, accessible, and genuinely impactful.
