I am proud to be able to provide a platform for individuals and groups whose voices often goes unheardDr Sondra Butterworth
Welcome to RareQoL Consulting, where expertise meets empathy, and experience transforms into empowerment.
Our consultancy is built upon the foundation of diverse and rare disease advocates who bring together their unique journeys, specialised knowledge, and a shared passion for making a difference.
We are more than consultants; we are advocates, educators, and allies on a mission to drive change, raise awareness,
and provide unparalleled insights into the world of rare diseases.
Communities of Practice
2. Specialised Knowledge and Education
Beyond our personal experiences, we also boast a wealth of specialised knowledge gained through education, research, and professional development. Our team members have backgrounds in medicine, genetics, research, psychology, advocacy, and more, ensuring that our insights are well-rounded, evidence-based, and up-to-date
1. Expertise Through Experience
Our consultants are individuals who have faced the challenges, triumphs, and complexities of living with diversity rare diseases. This unique perspective allows us to provide empathetic guidance, practical advice, and unwavering support to patients, caregivers, and organizations seeking to make a difference.
3. Raising Voices for Better Choices
Inclusive Research and Practice
RareQoL Consulting is committed to elevating the voices of those diverse communities, under-served and under-represented groups, and those affected by rare diseases. We advocate for increased awareness, improved policies, and enhanced support networks. By sharing our stories and expertise, we strive to shed light on the challenges faced by the communities we serve, and foster a more compassionate and inclusive society.
Coaching and Mentoring
Our Dual Role: Experience and Expertise
At RareQoL Consulting we proudly embrace our dual roles as experts through experience and specialists through education and skill development. Our team is composed of individuals who have navigated the challenges of inequalities and rare diseases firsthand, ensuring that our insights are not only informed by research and education but also shaped by the personal realities of those living with these conditions.
EDI Service Evaluation